Patient Journey Challenges to Accessing Gene Therapy
Lengthy diagnostic delays, complex referral processes, narrow treatment windows, extensive eligibility screening, difficult insurance authorization processes and emotional stress of navigating these prior to receiving gene therapy plus social, behavioral and psychological challenges after gene therapy.
https://pubmed.ncbi.nlm.nih.gov/38718133/
https://pubmed.ncbi.nlm.nih.gov/28103787/